Potential data users are likely to find us through the HDR UK Innovation Gateway, where good documentation is key.
Therefore all pages list proposed improvements, and where these relate to improvements under the HDR UK Data Utility Framework for September review, these pages are starred in the list of "Additional Resources" below.
To show progress, changes between July and September 2021 are marked as "new" and "revised" as appropriate.
Sources
There are 4 main sources of data in Gut Reaction:
| Source institution | Programme | Data types | Additional funders |
| NIHR BioResource | IBD BioResource |
|
NIHR, MRC |
| NHS Trusts | - |
|
NHS England |
| IBD Registry | COVID-19, PROMs |
|
Crohn's & Colitis UK |
| Wellcome Sanger Institute | UK IBD Genetics Consortium |
|
Wellcome |
During the COVID-19 pandemic, the NIHR BioResource has also requested and received data (“record linkage”) from:
- NHS Digital - describe
- Public Health England - describe
- ICNARC - describe
Participants
Data is only collected on participants who have consented to one of programmes. However, and deliberately, there is a very high-level of overlap between the groups:
Improvement post September review: insert Venn diagram of sources
Additional resources
Other pages on this site
- Who uses Gut Reaction datasets?
- Accessing Gut Reaction datasets
- Datasets in detail *
- How the datasets interlink *
- Frequently Asked Questions (FAQs)
- Comprehensive README *
- Policies *