About IBD BioResource
Inflammatory Bowel Disease (IBD), comprising Crohn’s disease and ulcerative colitis, affects ~500,000 people in the UK causing relapsing intestinal inflammation. Long-term management often requires major surgery and costly drug treatments to which responses vary considerably for poorly understood reasons. To help in the fight against Crohn’s and colitis, the IBD BioResource was established in 2016.
Our aim is to build a national research platform of 50,000 re-callable IBD patients and create a detailed panel of genetic and clinical descriptive data. This panel is accessible by any investigators to assist IBD studies and to accelerate the road to developing new, better-targeted and successful treatments.
We're currently looking to recruit a Data Manager for the IBD BioResource programme. You will work closely with colleagues, including the programme’s Principal Investigator, and liaise with gastroenterology research teams across the UK to ensure the smooth flow of accurate clinical, lifestyle and research data.
- To recruit 50,000 patients with Crohn’s or colitis from all over the UK, including 1,000 individuals who are new to their diagnosis
- Genetic analysis to identify markers of disease risk, severity and treatment response.
- Participants to be directly notified of future IBD research projects they might be willing to help with and be recalled for
- Scientists and Clinical Investigators to get rapid access to large groups of IBD patients and to de-personalised data for research
Gut Reaction aims to build on the high-quality health data in the NIHR IBD BioResource by combining it with ‘real-world’ data from participating NHS hospitals and the IBD Registry. This will allow researchers to use the pooled data to support important research into IBD.
Want to make a difference?
If you join us, you are helping to speed the progress of medical research. Every one of us makes a difference
Where do we operate?
The IBD BioResource is open in over 100 participating sites across the UK, including one in Scotland and two in Wales, and has recruited over 35,000 IBD patients to date.
What does taking part involve?
If you have Crohn’s disease or ulcerative colitis and are willing to participate in future IBD research then please check whether your hospital is included in the list of open sites, as recruitment needs to happen through your local hospital clinic.