A longitudinal study of reproductive choices in women with inflammatory bowel disease

Summary

Women with inflammatory bowel disease (IBD) have fewer children than other women. 

Previous studies have suggested that while some experience infertility up to 18% chose to not have children voluntarily. Our previous research has shown that women that remain voluntarily childless may have more severe disease, are more often single, are older, have less knowledge about IBD & pregnancy and have asked health care professionals less often about IBD & pregnancy.  

The previous studies have all examined the issue by asking women at one time-point in their life but have not followed up these women over time. We are interested in examining women’s choices about having children over time as the wish to have children is likely influenced by relationship status, current disease activity, patient knowledge and attitudes. These factors are fluent over time and previous studies may therefore not have captured the whole aspect of the study topic. 

We will approach patients that have participated in the IBD BioResource study and invite them to take part in this study by answering a yearly survey. This survey will include: questions on relationship status, demographic changes over last year, IBD status and treatment, attempts to conceive, any pregnancies and subsequent pregnancy outcomes, patient knowledge and patient views.

The study follows women until either the birth of a child or for 10 years.