What is it about?
The Young People’s BioResource is dedicated specifically to research which will help children and young people. The Young People’s BioResource will recruit children and young people, in close collaboration with researchers and healthcare professionals who are working to improve the diagnosis of common and rare diseases.
Many children and young people are living with a long-term illness, (for example diabetes, heart disease and mental health conditions) and a number suffer from multiple conditions. Living with chronic disease has a major impact on them and their family.
There will be two routes into the Young People’s BioResource. One is through recruitment through schools and the other is through hospital clinics.
We are starting recruitment in schools this year, inviting young people between the ages of 11 and 15 to join us to help make a difference.
Working closely with our partners the Anna Freud National Centre for Children and Families, we hope to reach out to schools across the country over time but will start with a pilot group of schools in Cambridgeshire, Peterborough and Birmingham.
I am a young person. Can I help?
Yes please. Without participants, research cannot progress. If you are between the ages of 11 and 15, with or without a health condition, we would like to ask you to help with this research by joining us. Our aim is to continue in-depth research into long-term health conditions. This knowledge can then be transformed into treatments to help those affected.
Find out more & register your interest
Email us if you are interested in taking part or would like more information on the Young People’s BioResource.
What do I have to do?
If you decide to join, you will be asked to donate a small saliva sample and complete a questionnaire about your health and lifestyle.
The saliva sample will be used to extract cells and DNA. This is so we can study the genetic make-up and the role of genes in keeping us healthy.
We will also ask you and your parent/guardian to fill in a consent form that describes how your sample might be used in research. Finally, we’ll ask you and your parent/guardian to grant us access to your health, education and social care records. For more information on participation see our participants’ pages.
In the Young People’s BioResource, both you and your parent/guardian need to agree that you can take part.
You can make a difference
We are recruiting young people aged 11-15 from schools, with or without health conditions, to join the Young People’s BioResource.
The steps are outlined below: