About the NIHR BioResource for Translational Research in Common and Rare Diseases
National Institute for Health Research (NIHR) Biomedical Research Centres (BRC) are based within the most outstanding NHS and University partnerships in the country, and are leaders in scientific translation – taking research at the bench to the bedside. You can read more about the existing BRCs at the NIHR website.
Each BioResource has established groups of healthy volunteers and patients with with common or rare diseases who have provided samples (of blood, saliva or other) and agreed to be recalled by genetic make-up (genotype) and/or physical characteristics (phenotype) to participate in medical research and trials.
Who will benefit?
Bringing all this data and resource together will benefit both patients and the public; and researchers in industry, academia and the NHS.
Research teams will be able to access large numbers of well characterised individuals. This will particularly help with the study of rare diseases where identifying and recruiting particular groups of volunteers and patients is complicated and can take time.
Patients will benefit too, and as the resource grows having larger numbers of people being able to participate in clinical research and trials of new drugs or treatments will enhance that research. Improved access to research volunteers will ensure that research can be completed quickly and effectively, making it easier to bring new treatments to market.
What is the NIHR BioResource?
The NIHR BioResource is comprised of volunteers from around the country who have given their consent to and a biological sample, they have said we can access their medical notes or health related records, and they are willing to be approached to participate in research studies and trials on the basis of their genotype, and or phenotype.
There are 13 NIHR BioResource local centres throughout England, and they are located in Birmingham, Cambridge, Exeter, Leeds, Leicester, London – includes Barts, Guy’s and St Thomas’, Maudsley, Moorfields and UCLH; Manchester, Newcastle and Southampton. If you are interested in finding out more, please contact your local centre.
Each centre will recruit people with and without health conditions; currently we have recruited over 100,000 volunteers.