Driving progress in children’s health research
- Published: 27 August 2026
- Category: D-CYPHR
The DNA, Children + Young People’s Health Resource (D-CYPHR) has reached a huge milestone, with more than 14,000 young health heroes joining the programme so far. By studying thousands of DNA samples alongside health and lifestyle data, researchers can gain a deeper understanding of how genetics and environmental factors influence our health. These insights can help explain why some people develop certain health conditions while others do not, paving the way for new treatments, earlier interventions and improved healthcare for future generations.
Research studies
After joining D-CYPHR, volunteers may be invited to take part in research studies if they match specific criteria required by researchers. This could be based on the genetic profile from their DNA sample or information provided through health and lifestyle questionnaires.
Any invitation to a study includes detailed information about what participation involves, allowing volunteers and their families to make an informed decision about whether they would like to take part. Participation in studies is always voluntary.
So far, D-CYPHR volunteers have contributed to four research projects:
- SPARX UK
- Metabolic Reference Measurements in Childhood and Adolescence
- ATTEND: Adolescents and Carers Using Mindfulness Therapy to End Depression
- Incorporating Children and Young People's Preferences into Clinical Decision-Making Tools for Early Mental Health Support in Primary Care: An Online Survey Study.
Ensuring everyone is represented in research
D-CYPHR has continued its work with community organisations, Caribbean and African Health Network (CAHN), South Asian Health Action (SAHA), Inclusive North and Black Health Initiative (BHI) to address underrepresentation in research and tackle health inequalities.
These organisations play an important role in supporting D-CYPHR. They provide valuable feedback on our materials and strategies, take part in workshops and meetings, and help raise awareness of children's health research by promoting it at events.
Caribbean and African Health Network
Recently CAHN attended the Manchester Caribbean Carnival, a weekend filled with musical talent, vibrant community spirit and celebration of Caribbean culture. The team highlighted to families about why diverse representation in health research matters.
South Asian Health Action
SAHA had a stall at the Leicester Mela, a day of South Asian entertainment, street performances, arts, culture and food, and spoke with families about the importance of health research and how they can help build a healthier future for all children in the UK.
Having greater participation from diverse communities helps researchers better understand different health needs, leading to more inclusive and effective healthcare for everyone.
Get involved today
D-CYPHR, part of the NIHR BioResource and in partnership with the NHS, encourages families with children aged 0-15 in the UK to sign up online. It’s as simple as filling in a health and lifestyle questionnaire and donating a sample of saliva via a kit sent in the post. We need volunteers with and without health conditions to better understand childhood health. Find out more about D-CYPHR and join today.