How to join

Recruitment for the NIHR BioResource – Rare Diseases is being carried out across the country at a number of NHS centres.

If you or your child are eligible to join the NIHR BioResource – Rare Diseases your clinical care team will give you an age appropriate Patient Information Leaflet (PIL) which explains the nature of the study in depth.

If you have already been invited then please speak to your consultant about taking part. If you have not been invited but are interested to find out if your clinical team is involved in recruitment, email the enrolment office


Find out more

If you would like to find out further information about the NIHR BioResource, please click the link below, to find the person to direct your enquiries to.