How to join

Recruitment for the NIHR BioResource – Rare Diseases is being carried out across the country at a number of NHS centres. The NIHR BioResource – Rare Diseases is currently focusing on recruitment in the areas of Infection & Immunity, Neuroscience, Rare Diseases (including rare cancers) and Cardiovascular Disease. To find out which rare diseases are currently under investigation and recruiting patients please visit the Current Research page.

If you or your child are eligible to join the NIHR BioResource – Rare Diseases your clinical care team will give you an age appropriate Patient Information Leaflet (PIL) which explains the nature of the study in depth. Click on the links below to view the leaflets for adults, young people and children.