What is the BioResource
The National Institute for Health Research (NIHR) BioResource is comprised of volunteers from around the UK who are willing to be approached to participate in research studies and trials on the basis of their genetic make-up.
The first BioResource was set up in Cambridge in 2005 and over 12,000 volunteers have joined and taken part in a number of research studies. NIHR BioResource, is building on established patient and volunteer groups at each centre and hopes to have around 20,000 volunteers ready by the end of 2013.
NIHR BioResource – Rare Diseases will recruit patients with rare diseases and their relatives. If you are affected by a rare disease and would like to find out more about our research work please click here.
In future each centre will be recruiting patients and volunteers and the plan is to increase that number to over 100,000 by 2017. To find out more click on the video link.
Volunteers who join BioResource donate a sample of blood or saliva and this is used to determine their genetic make-up (genotype). Together with other information such as their gender and ethnicity (their phenotype), volunteers are selected and recalled to participate in specific research studies. In this way, BioResource is able to provide researchers with groups of volunteers, tailor-made to the research question at hand.
‘More than ever clinical research needs collaboration and research teams working together. The NIHR in creating the BioResource is bringing BRCs together to create this unique resource.’ Dame Sally Davies, Chief Medical Officer